Personal Experiences with Scleroderma – Karen Vasquez

My name is Karen Vasquez.  I started a blog called Scleroderma, Sarcoidosis and Box Wine in 2009.  After meeting fellow patients on Facebook and Twitter, I realized not too many people were talking about scleroderma, but I found plenty of fellow patients. I hypothesized that the PR department for disease naming really messed it up …

Each year over a million women are diagnosed with a benign breast tumor or lump.  Many of these are fibroadenomas, the most common type of benign breast disease.  Although not cancerous, half of them are surgically removed at the request of the patient.  It’s a procedure covered by most insurance companies. Of course, surgery is …

The “U” and “I” Words of Symptoms: Urinary Incontinence A Caregiver/Caree Guide to Overcoming Stigma, Embarrassment, Possibly Incontinence Itself and Obtaining A Higher Quality of Life

According to The National Association For Continence (NAFC), over 25 million people deal with a type of incontinence, and it’s important to note that incontinence itself is not a disease, but a symptom. A symptom that, for many, brings on feelings of embarrassment, humiliation and can progressively keep them from living their daily lives as …

Emotional and Social Aspects of Life with Chronic Illness

On January 15th we’ll be participating in a “Tweet Chat” hosted by Treatment Diaries and we’re thrilled to have such an opportunity. The topic includes the emotional and social aspects of life with chronic illness, as well as exploring experiences with stigma or discrimination.  It’s a lot to cover, but these are areas that often …

The Art [of] Delivering a Cancer Diagnosis

By way of background, I served as the pediatric oncology nurse practitioner at Dartmouth-Hitchcock Medical center prior to the birth of our son. Prior to becoming a nurse practitioner, I served as a pediatric oncology [and] bone marrow transplant nurse. In addition, I am an adult survivor of a childhood cancer. It is more than …

Childhood Cancer…Research…the Need for a Cure

A mother noticed that her six year-old son’s eyelids were not closing and when he walked, he was slightly off balance.  A few days later, his parents’ worst nightmare became a reality; they were told that their son has a brain tumor. His diagnosis did not come easy. Various pathologists could not give a definitive …

Scleroderma – The Disease That Turns Your Body to Stone

Unless you are personally affected by scleroderma, such as a patient or the family member or a friend of someone with the disease, it’s highly unlikely that you have ever heard of it. “Scleroderma” comes from the words: “sclero” meaning hard and “derma” meaning skin. It is a chronic disease where an overproduction of collagen …

Bitnami